LEAPING BUTTERFLY
MINISTRY

A CHRIST-CENTERED COMMUNITY

OF SUPPORT FOR

GIRLS & WOMEN WITH

TURNER SYNDROME

SOF CELEBRATIONBUY A BOOK

LEAPING BUTTERFLY MINISTRY

A CHRIST-CENTERED COMMUNITY

OF SUPPORT FOR

GIRLS & WOMEN WITH

TURNER SYNDROME

SOF CELEBRATIONBUY A BOOK

WHAT IS TURNER SYNDROME?

Turner syndrome is a chromosomal condition that affects girls and women with common conditions such as:

  • Delayed puberty
  • Heart defects
  • Puffy hands and feet
  • Learning difficulties (i.e. math)
  • Kidney, thyroid, and liver concerns
  • Hearing loss
  • Frequent ear infections
  • Social difficulties
  • Infertility due to nonfunctional ovaries
  • Scoliosis
  • Short stature (under 5 feet)
  • Many moles
  • Receding lower jaw
  • Low-set ears
  • Triangular face
  • Webbed neck

Turner syndrome can be diagnosed throughout the lifespan including adulthood with a test called karyotype. Currently, 50% of the girls born with Turner syndrome are not diagnosed until their pre-teen or teen years. These girls and women do suffer from infertility and other medical symptoms that require life-long care. Advances such as growth hormone and estrogen therapy have improved the lives of girls and women with Turner syndrome.

Info About the TSRR Registry

The Turner Syndrome Society and its partners have created the Turner Syndrome Research Registry (TSRR) dedicated to Turner syndrome research. The TSRR is a private and secure way to collect TS related health care information from participants and allows TS researchers to connect with you or information about you. The Registry system built on the PEER (People Engaging Everyone Responsibly) platform created by Genetic Alliance. It only takes the participants 15 minutes to register and complete the initial survey.

Click Here to Join!

HOW YOU CAN HELP

BUY A BOOK

When you buy a copy of Loving a Leaping Butterfly all proceeds go towards Turner syndrome.

PURCHASE WITH PAYPAL

DONATE

Donate to Leaping Butterfly Ministry to help girls and women with Turner syndrome.

MAKE A DONATION