“For thou didst form my inward parts, thou didst knit me together in my mother’s womb. I praise thee, for thou art fearful and wonderful. Wonderful are thy works! Thou knowest me right well; my frame was not hidden from thee, when I was made in secret, intricately wrought in the depths of the earth. Thy eyes beheld my unformed substance; in thy book were written, every one of them, the days that were formed for me, when as yet there was none of them.”
I was diagnosed with Turner’s syndrome when I was 14 years old, and did not meet anyone else with Turner’s syndrome until I was 19. I think I always felt a bit different, even though we lived a very active life in Idaho. I still think I had questions about why this happened to me!
It was the winter that I was about 16 that I went on a retreat with others my own age and found Psalm 139. It became clear to me just how much God loved me and that He had created me with His own hands and plan. Who was I to question why God had made me with Turner’s. I think it was a big turning point to my acceptance of my diagnosis and all that comes with it.
At 53 years old now, I am very blessed with a healthy body otherwise and continue to be active and productive. God has also given me a growing network of friends and support through the Turner’s syndrome Society. I have been to national conferences and learned so much. It is a joy to meet wonderful people like Debbie whom I met in Anaheim, CA.
I encourage everyone to get involved, it will change your life, “no mistake”.