This blog post is about changes in Turner syndrome prognosis and Turner syndrome treatment.
by Debbie Browne
Dr. Michael Silberbach, Professor of Pediatrics/Radiology and Cardiologist, with over 20 years’ experience caring for children with heart disease, has also become the most respected physician within the Turner syndrome community.
His passion is for children who are facing genetically triggered heart disease, but especially the aortopathy of Turner syndrome females.
Since 2003, Dr. Silberbach has directed the “Healthy Heart Project” for Turner syndrome girls/women at the annual TS conference, for which our generous Leaping Butterfly Ministry donors have funded since 2013; this past July LBM provided 71 echocardiograms.
When my daughter, Kellie, passed away on February 29, 2008, the society met me for lunch and recommended I consider giving Dr. Silberbach permission to access Kellie’s hospital records to include in his research study. I eagerly agreed in hopes of helping someone else in the future.
The “Good Doctor”, my nickname, goes over and above the call of duty to work tirelessly for a group whom he defines as underserved for way too long. To the TS community, me included, he has become our hero in so many ways.
Recently, I was privileged to have a phone conversation with him and listen with the greatest respect as he shared ‘why’ he does what he does. It moved me to tears.
He shared, “Even when it’s time for me to retire, I will still be doing research for those touched by Turner syndrome.” His story led into my story as I shared ‘why’ I do what I do, and we found one thing in common; we are in this for the long haul. We will not be shaken because those who have fought the odds deserve so much more.
And, that’s why I am so pleased to announce Dr. Silberbach’s willingness to come to Houston on February 22 to speak a Lunch and Learn Luncheon at Texas Children’s Hospital in The Woodlands and at our 5th annual Seeds of Faith Celebration that evening.
Thank you to Texas Children’s Hospital for hosting this Lunch and Learn educational seminar with area doctors!
At our Seeds celebration, you are so going to be so blessed to hear and meet a man who sincerely cares.
Welcome Dr. Silberbach!
Leaping Butterfly Ministry relies on donations to change lives, to create awareness of Turner syndrome, contribute funds for research, and support for those touched by TS. Click here to see how you can help.