From a Mother’s Heart

The following is written by a mother who lost her daughter with complications from Turner syndrome. Cathy was the first to reach out to me, Debbie Browne, when I lost my daughter 5 years later. I’ll never forget our sweet tearful lunch, how Cathy met my aching...

Hannah’s Hope

This guest post is penned in loving memory of Ava Elizabeth Reed and Karina Nicole Robledo; and in honor of their Mommy’s, Amy Paulsen-Reed and Jessika Robledo, TS moms who held their tiny stillborn daughter’s for only a moment here, but will hold them in...

Love bears all things…

“Love bears all things, believes all things, hopes all things, and endures all things.” 1  Corinthians 13:7Our story begins with our first ultrasound we had with our daughter, Alba. We were excited, scared, everything an expectant parent would be. With just...

God Has a Special Plan

“Yet you brought me out of the womb; you made me trust in you even at my mother’s breast.  From birth I was cast upon you; from my mother’s womb you have been my God.” Psalm 22:9-10 I am a 59 year old with TS.  We sure hadn’t heard of it or knew...

With Love

“Be completely humble and gentle; be patient, bearing with one another in love.” Ephesians 4:2 NIVI remember the day that I found out that I had Turners Syndrome. I felt like a lab rat being poked and prodded. The worst part of the day was feeling different.  To...