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The following is written by a mother who lost her daughter with complications from Turner syndrome. Cathy was the first to reach out to me, Debbie Browne, when I lost my daughter 5 years later. I'll never forget our sweet tearful lunch, how Cathy met my aching heart...

This guest post is penned in loving memory of Ava Elizabeth Reed and Karina Nicole Robledo; and in honor of their Mommy's, Amy Paulsen-Reed and Jessika Robledo, TS moms who held their tiny stillborn daughter's for only a moment here, but will hold them in their hearts...

“Love bears all things, believes all things, hopes all things, and endures all things.” 1  Corinthians 13:7Our story begins with our first ultrasound we had with our daughter, Alba. We were excited, scared, everything an expectant parent would be. With just...

"Yet you brought me out of the womb; you made me trust in you even at my mother’s breast.  From birth I was cast upon you; from my mother’s womb you have been my God." Psalm 22:9-10 I am a 59 year old with TS.  We sure hadn’t heard of it or knew anything...

“Be completely humble and gentle; be patient, bearing with one another in love.” Ephesians 4:2 NIVI remember the day that I found out that I had Turners Syndrome. I felt like a lab rat being poked and prodded. The worst part of the day was feeling different.  To...

“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29:11I have Turner syndrome. I used to be angry. Angry at the doctors. Angry at the growth hormone injections I took....

"Do not love the world or anything in the world. If anyone loves the world, love for the Father is not in them. For everything in the world—the lust of the flesh, the lust of the eyes, and the pride of life—comes not from the Father but from the world. The...

“For thou didst form my inward parts, thou didst knit me together in my mother’s womb. I praise thee, for thou art fearful and wonderful. Wonderful are thy works! Thou knowest me right well; my frame was not hidden from thee, when I was made in secret, intricately...

“You, dear children, are from God and have overcome them, because the one who is in you is greater than the one who is in the world”. I John 4:42013 was a rough year for me however; it was the most blessed year, too. I started last year with a new job, but within a...

“God will meet all your needs according to his glorious riches in Christ Jesus.” Philippians 4:19In 1958, at the age of 4, my doctor recommended that I be taken to Pittsburg Children’s Hospital to have surgery on my webbed neck. Seems like yesterday. I was in a room...