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Butterfly Thoughts, Part One
Written by Angela Aja, blog contributor for Leaping Butterfly Ministry My life went from luxury to loneliness, seemingly overnight. Just like the caterpillar, inching its way through life until it disappears into the cocoon for metamorphosis to begin, my tragedy...
Friends on a Plane
From Emily Markowski ... I was on my way to the TSSUS conference, just loading into a connecting flight to Denver. On the walkway to the plane, I overheard a cheerful voice talking about an her trip to the Amazon with a fellow passenger. I looked behind me and saw...
His Grace is Sufficient
From Ann VanGelder... At 13, I was diagnosed with Turner syndrome. Looking back now, the only thing that comes to mind is how evident God's grace has been in my life. I was angry for a long time. I avoided anything to do with my TS, except for my yearly...
Discovering Significance!
From Kyle Fernandez ... Greetings blog readers! I wanted to take a few minutes to tell you about my first experience at the 2017 TSSUS conference in Denver – from my perspective. First, for those of you who do not know what “TSSUS” is, it’s the Turner Syndrome Society...
A Mission to Support Other Families Impacted by TS
Thank you Heather Bienz for supporting Leaping Butterfly Ministry! Please read Heather's testimony and mission to support other families impacted by Turner Syndrome. From Heather ... In May 2015, I lost my 2nd daughter, Reagan, to Turner Syndrome and delivered her...
Opportunity is on the Road in the Middle of Nowhere
When I met Debbie Browne a few years ago she told me her story and we immediately bonded. She had a daughter with Turner’s syndrome and I had a sister with Down’s syndrome. We both learned through life’s circumstances there is always joy in the journey. Taking the...
She’s a Miracle!
At 19 weeks pregnant, a routine ultrasound would tell my husband and me if our 3 big girls would have a sister or brother. The tech announced it was a girl! We celebrated then my husband left for work. Later my doctor came in to speak with me with a look of concern....
What’s in a Name?
There are so many wonderful things I could say about my husband however, there was one thing I had an issue within our marriage. Vinnie wasn’t very good at picking out a nickname for me – or, so I thought. You see being a “little person” I’ve had endearing...
More Blessed to Receive and To Give
Although the title of this blog seems odd you will soon discover the meaning. For if it weren’t for receiving there would be no money to give.With growing interest in awareness for Turner syndrome I was approached by a young lady by the name of Danielle who asked me a...
Linking Up With Friends
I was eleven when I found out I had Turner syndrome. I so remember that day. I was at my cousins for the summer visiting. My mom called and asked me if I was sitting down. I told her no but I can. She then proceeded to tell me that they found out what was wrong with...